Synovial Syntax

Posts Tagged ‘GoodThings

It’s going OK!

I got some prescription goggles to boost my confidence before trying swimming again. I just can’t find a stroke that doesn’t gnaw at my ex-fissured tendon in my right shoulder though, so I will be keeping the goggles* for only very recreational swims for the time being, and for being able to tell if my kids are actually happy or not when in the pool with them.

On the other hand, as it were, I am really getting worked out with no twinges with the Wii EA Sports trainer thingy. I’ve never done this kind of thing before, resistance training, but after my consultant sang the praises of it in stabilising and strengthening joints I knew I had to have a go. It’s really easy to work round any things you shouldn’t attempt, and just so much fun. Cardio boxing anyone? I never knew I had that much left-right-left-right jab in me. Must be the Humira injections 😉 I also love the obstacle courses where you do a variety of sporty sweaty things without getting bored or wondering what’s for dinner.

Talking of which, nearly two stone off now, despite onset of summer holiday meals, picnics, bbqs, ice-creams. Theoretically, four still to go by BMI measures, but even as svelte young thing I looked weird if a mid-range BMI, twiggy, so I’ll be happy with another two off.

Oh my, I would love to shop from all the High Street shops again, not just a selected few.

*My fingers kind of refuse to type “goggles”. They want to type “Google” all the time. You know you are online too much when this kind of thing starts happening.

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On Wednesday I also got the green light to get into some proper exercise. My joints have stabilised and shoulder tendon healed. I’ve been advised three things – swim for cardio health, resistance train to strengthen joint support from muscles and try and get on a power plate now and then to improve bone density. I think that was what he said about the power plate anyway.

Am going to go and look up this link with resistance training and RA especially.

Wanted to fit a first swim into a very busy time last week, was about to set off and realised I’d thrown my goggles out in a hissy fit back in the bad old days, probably accompanied by a histrionic ‘I’ll never swim again, *sob*’. Have decided to invest in the fit future and been to SpecSavers to treat myself to prescription goggles this time. Looking forward to this.

In lieu of the swim, or cash for trainer/gym at the moment, I hoiked myself back onto the Wii Fit today. Managed to fit 15 minutes of its aerobic stuff into a daftly complex morning. Was thrilled to find my hips and knees have stopped grating and wobbling out when doing the virtual hula hoop. Really feels like progress, that tiny 15 minutes.

Confidence booster. I just did this today:)

Flick

Feel those elbows cope!

I’m just out of consult, and it’s as good as it gets. It’s a sort of remission, or a serious damping down at any rate.

I have to live with the monthly peaks, plan around them and get exercising again preferably without injuring myself this time. Lesson learnt, just because it feels good at the time, I can’t really thrash things in the pool like I used to! Plus I must stop trying to play so hard with my ever growing young boys. The main impact of injuries in my case seems to be, apart from extra joint damage, that I then have to take steroids which melt my immune system, increasing infections rate and severity and meaning I have to delay the MTX and Humira. Which in turn cycles me into non-healing joints etc.

I live and learn.

Bloods are all behaving nicely. It was also reassuring to hear about new research which shows anti-TNFs reduce cholesterol which been raised a bit by MTX.

I had a good whinge about my GPs daft notion that I go in 24 times a year to present blood results, despite only have my bloods done 6 times a year (which needs 12 visits only). Hopefully I’ve imploded that situation anyway by arranging with pharmacy to run my repeat MTX situation. They seem infinitely more efficient and less panicky than the GP reception staff.

That’s it really. I know this situation is as good as it gets, as my next appointments are in the agreeably hazy future, and not next month.

Huuray:)

A song about auto-immune diseases? No way! Yes way.

Peerlessly cheerful sunny Sunday morning dance around laughing and singing fodder!

What a good girl

Fab journey in, snow out of London = no traffic in London. Clinic late to get going, but was well armed with papers, mags and coffee, so was just revelling in child free morning.

Saw the Prof, and I got a gold star for being such a good Humira responder. Rock solid good blood work. No joint swelling. See you in three months time. He won’t countenance going to every 12 days on its frequency just yet. Need more evidence over time. Has reduced my MTX now right down to 10mg, see if I can come off it. Hope I can, would love to live without the weekly day of nausea. Some concern over sore throat and persistent cough, but not much, as I am clearly so well otherwise and exposed to so much junk via kiddies. Just keep an eye on it. Though would have been sent for Xray to be on safe side, if the unit was working normally. Was emergency films only due to staff shortages in the snow. Probably will have to go to GP next week if no better, but all this gets easier soon, as older boy starts school today!

Nothing else to report on the NHS front. Except that I got advised by a TV screen in the waiting room to ‘enjoy sex responsibly’. Which made me want to spit my coffee. Because a) it’s 0810 and b) it’s not your business and c) I’ll enjoy it or nay as I please and d) it’s not alcohol, just don’t be daft.


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