Synovial Syntax

Posts Tagged ‘Filthmerchants

What a grand old weekend. Family, weather, time out. Merchants of Filth have been served eviction notice by the incensed and sensible (now we’ve finally found her) freeholder. It is such a relief there is some peace on the horizon. It has not been helpful for a person with fatigue to have so much interrupted sleep.

I’ve been surfing for a couple of hours to entertain myself after a suprisingly active day. I’m cheating on my blog today by simply linking to this look at Kafka’s NHS. Much has amused me today, but the fact that these diagrams are ‘real’ is probably the lemon-acid icing on my cake.

J and me pre-gig

J and me pre-gig

I had a much anticipated night out last night, Tracey Chapman at the Roundhouse in Camden. Nice and local, gorgeous weather, good company (thanks for thinking of the gig and of me, J) and just a knock out voice, set and venue.

I haven’t been in a crowd like that since, well, since, um, I can’t really remember. I did decline my natural urge to get in the thick of things and boogie away nearer the front, as it suddenly and wisely occurred to me I wouldn’t appreciate joints being knocked and stomped. I went through the usual ‘I’ve been stymied by RA’ reactions in about six minutes: annoyed, tempted to ignore it, felt sorry for myself +++, got over myself and thought ‘I’m here, I can shuffle in time, I can stay the course of the night and wow, she’s got such a voice’. In other words, I accepted it quickly and gracefully and got on with enjoying it. This is really great progress, as earlier in the year I’d have felt sorry for myself for a looooong time and not enjoyed the gig or anything else this week, being in a sulk about my limitations.

It was also an interesting exercise for me to look at the crowd, and see others with visible physical limitations enjoying themselves and imagine how many had invisible burdens they were carrying. I certainly did not feel alone in that crowd. I was even able to be thankful for being so damn fat, when one of those typical pushy-pushy crowd hogs tried to elbow me out of the way during the closing songs. I had about 6 stone in weight on her, and I smiled sweetly, stood my ground and thought ‘The ladies not for turning, dear’. Look at me, identifying with Maggie T . Whatever next in my RA inspired psychological development?

To cap it all, we’ve had some action from the managing agent and the freeholder of the sty house the merchants of filth inhabit next door. We have hopes of effective action over the next few days. Fingers crossed, those of us whose joints allow it 🙂

Merchants of Filth, June 17 2009

Merchants of Filth, June 17 2009

This picture got some very funny comments on Facebook, ‘Pete Doherty left his hat’ and ‘Do they bounce the bin bags off the trampoline’ being two of them. If I can just say they are as noisy at night as they are dirty in this pic, I think you can guess the stress the neighbourhood and us on either side of them are living with.

The freeholder lives in a glorious quiet road in leafy Hampstead, and if she doesn’t do something about her tenants soon, I fear I may not overcome my urge to take the bin bags up for her to enjoy. She’s a QC (!) so I won’t be doing a thing illegal, but noone can stop me enjoying thinking about them.

The backyard stinks. Week old + bin bags in hot sun next door. Will buy extra thick binbags and ask them to double bag them, and print off the collection schedule for them. So am going to have to speak to them today. Sigh.

Early morning nausea has turned into a full-on quease. Complan for a late b’fast. If no joy with anti-TNF request/Rituximab request next week, must ask to try injectable MTX (methotrexate) to see if I can manage these side effects better.


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