Posted by: SynovialSensation on: November 11, 2009
Was the time spent waiting for my two appointments today. One hospital, one GP. Add in travelling time, nearly 5 hours. I’m not going to sound off about this, just note it. I was and am too busy trying to figure out a realistic number of hours I can offer to work in a month, [...]
Posted by: SynovialSensation on: September 29, 2009
…gritted through pain and effort of persistence. Mind you, not as awful as yesterday’s crisis. Not what you’d wish on an enemy either. So, i rang every 45 minutes til husband got home from his big bank job (no, not that kind!) at lunchtime. he had the kids this afternoon. i went down and had [...]
Posted by: SynovialSensation on: September 29, 2009
Oh lordy. Had a very extreme pain crisis yesterday afternoon and night. Right jaw – for which I have a maxillo-facial consult booked for end of October. Have had this pain on and off since November last year. Thought it was toothache, 4 visits to the dentist later, root canal work and a night-time bridge [...]
Posted by: SynovialSensation on: July 15, 2009
On our NRAS forum people often post of shocking neglect and woeful undertreatment by some parts of the NHS. A call to arms here.
Posted by: SynovialSensation on: June 28, 2009
What a grand old weekend. Family, weather, time out. Merchants of Filth have been served eviction notice by the incensed and sensible (now we’ve finally found her) freeholder. It is such a relief there is some peace on the horizon. It has not been helpful for a person with fatigue to have so much interrupted [...]
Posted by: SynovialSensation on: June 23, 2009
C day is consultation day. Tomorrow’s is also ‘cap in hand’ day. At the last consult he mentioned anti-TNFs as next stage, as I’ve not been responding well to methotrexate and sulphasalzine. I’m particularly hoping to be shot of the sulfa, which is no good for my mood. I’m going to ask if we can [...]
Posted by: SynovialSensation on: June 21, 2009
The System is the tongue in cheek term I’ve chosen for the healthcare arrangments in England, under the National Health Service. Tongue in cheek because for all the individual instances of awfulness and excellence you find with clinicians, it’s the way the whole thing (doesn’t always) hang together that is fertile ground for writing. This post is [...]
Posted by: SynovialSensation on: June 19, 2009
My consultant’s eyes light up when I reappear with this each visit, and he shows it off to any visitors. I capture the data every couple of days. It makes him happy, and gives me an illusion of control, which is a double good thing. And as time goes by I find it useful to [...]
